Vegan foodie · LA local · Sialidosis Type 1 advocate · Plant-based since 2019. This is my story.
Los Angeles, CA
Sialidosis Type 1 is a rare inherited lysosomal storage disorder that affects the nervous system. Fewer than 100 people worldwide are known to have it which makes finding community and funding research incredibly difficult.
A rare lysosomal storage disorder caused by a deficiency of the enzyme neuraminidase (NEU1), leading to progressive neurological symptoms.
Fewer than 100 known cases worldwide. This rarity makes research funding extremely limited and a diagnosis a life-changing moment for any family.
Plant-based diets reduce systemic inflammation, support neurological function, and promote overall wellbeing — all of which have made a real difference for me personally.
A rare lysosomal storage disorder caused by a deficiency of the enzyme neuraminidase (NEU1), leading to progressive neurological symptoms.
Fewer than 100 known cases worldwide. This rarity makes research funding extremely limited and a diagnosis a life-changing moment for any family.
Plant-based diets reduce systemic inflammation, support neurological function, and promote overall wellbeing — all of which have made a real difference for me personally.